The association is open to the people with LCH or concerned by this rare disease.
It offers
- information on the disease
- contacts between families
- meetings with doctors

We aim at
- encouraging and supporting medical research
- being taken into account by authorities at all levels

The association is a member of

(French Alliance of patients’ org for rare diseases)

(European org of patients’org and Alliances)

For more information, please contact us

or tel. + 33 1 60 66 93 77